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Her name is Jessica Leoni. She turned 10 this July. Jessica has the devastating
neurological condition known as Niemann-Pick Type C (NP-C) disease. Her family
and friends have joined together to fight for Jessica, and you are invited to
join them.
Start here!
You can click on the Niemann-Pick button to get all the facts about this terrible
affliction - how it affects its sufferers, and what is being done in medical research
and patient & family support. you can click through to Jessica's Home Page and
read about her, view her progress, visit her family and friends, and see why we must
fight for her, now.
You can contact us by email and check out "What's New?" for the very latest news about
Jessica's life and for the latest news and developments in medical research and our
efforts to raise awareness and support.
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View regular updates on how Jessica is doing, or send a special note to Jessica
and her family by clicking on
CaringBridges.
Spiritual
Convergence:
Please read about our Community Offering for those affected
by Niemann-Pick Type C Disease.
Click here for more information.
Help spread the word...purchase a "Fight for Jessica" bracelet for $4 (includes shippping)
Jessica attended the the tapings of a few episodes of
"So You Think You Can Dance!" on FOX TV with the Jessie's Girls! Some of the dancers posed for a picture with her
and have worn the Fight for Jessica bracelets during their practices.
A huge thank you to all those So You Think You Can Dance bloggers who have purchased our bracelets and are spreading the word!
May 1, 2006 -- USA Today published a story featuring the Leoni family's experience with
NP-C. Please CLICK HERE to view it.
Westchester
Joins the Fight!
Westchester
Joins the Fight!!!
Westchester Community rallies in the Fight for Jessica.
Los Angeles Fire Department Captain Jeff Elder and Los Angeles
Police Officers, David Morales and Stacey Witty were honored
as Hometown Heroes. Click here for
more information.
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A community event,
Celebration of Angels,
has hosted a fashion show the last number of years.
Jessica participated in the show in the Spring of 2004. This spring, 2005, the Celebration of Angels
was once again held at the Furama Hotel and hosted by Events Extraordinaire's Terry O'Connor.
Half of the proceeds of the Celebration were designated to the Fight For Jessica.
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A local
Brownie troop in Westchester
joined the Fight For Jessica as well. Headed by a Visitation Mom whose daughter is a classmate of
Jessica's, the Brownie's designated part of their Cookie Drive Revenue to the cause.
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Music West's
Laura and Jeff Remington, along with their Board of Directors,
committed to Join the Fight in conjunction with this summer's production of "The Music Man." With
Westchester kids making up the cast, Music West's Michelle Dimarco sold flowers at performances,
with proceeds going towards the Fight For Jessica. Jeff addressed the audience, spoke about Jessica and
what they were doing as a group, and urged others to get involved.
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Kalani Letona 1997-2002
Kalani was a special friend to Jessica. They shared something none of us wanted
them to share. Jessica's progress gave Kalani's Family some sense of hope. Kalani's
illness gave us a reminder of the sense of urgency we have as Niemann-Pick families.
Kalani is at rest now, but his family mourns.
We mourn with them.
We mourn for them.
Please remember Kalani and his family in your prayers. When we are done crying,
help us strengthen our resolve to continue the gallant fight against Niemann-Pick
Type C Disease.
God, receive Kalani into
your tender care.
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| We mourn the passing of Christa
and offer our deepest sympathy and condolences to our very special friends, the
Parseghian Family. With permission, we have posted two articles about Christa
and the Parseghians on this site. |
- CHRISTA MARIE PARSEGHIAN
April 12, 1991 - October 23, 2001
If a child is a smile...
If a girl is a sassy giggler...
If a friend is eyes that sparkle with warmth...
If a sister is a hug that never ends...
If a daughter is a littlest angel...
If a soul is purple and glows with joyful light...
If love is for always...
Then she is Christa.
Christa is survived by her parents, Michael and Cindy; brother, Ara; ``best''
sister, Marcia; and preceded in death by her brother, Michael. Christa is also
survived by her paternal grandparents, Ara and Katie Parseghian; maternal grandmother,
Vickey Buescher; aunts, uncles, cousins ,and many friends.
Rosary and Visitation on Friday, October 26, 2001, 7:00 p.m. at St. Thomas the
Apostle Catholic Church, 5150 N. Valley View Rd. Celebration of Life Mass will
be offered on Saturday, October 27, 2001 at 10:00 a.m. at St. Thomas the Apostle
Catholic Church.
In lieu of flowers, contributions may be made to the Ara Parseghian Medical Research
Foundation, 1760 E. River Rd., Suite 115, Tucson, AZ 85718. Arrangements by EVERGREEN
MORTUARY & CEMETERY
- To
read the article about Christa by JANE ERIKSON in The Arizona Daily
Star click here.
- To
read the article, "A Lesson in Dying,"
By PAULINE ARRILLAGA, Associated Press Writer, click
here.
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